Episode 14: Utilising Global Data Registries for MS Research

The development of global databases that record and store large amounts of clinical data for people living with MS has made a significant difference to the MS research world.  In this episode, we talk to Izanne Roos of the University of Melbourne and Cyrus Daruwalla of the University of Cambridge about the types of registries that currently exist, the importance of collecting observational data and how they used both in their research, which was presented as part of the late-breaking session at ECTRIMS 2022.

References:

• Rituximab vs Ocrelizumab in Relapsing-Remitting Multiple Sclerosis | JAMA Neurol. 2023 Jun 12
  e231625. doi: 10.1001/jamaneurol.2023.1625. Epub ahead of print. PMID: 37307006; PMCID: PMC10262062; Roos I, et al.
• Early non-disabling relapses are important predictors of disability accumulation in people with relapsing-remitting multiple sclerosis | Mult Scler. 29 Jun 2003 (7) pp 875-883
  doi: 10.1177/13524585231151951. Epub 2023 Feb 27. PMID: 36851894; PMCID: PMC10278381; Daruwalla C, et al.